TAPS Support (@tapssupport) 's Twitter Profile
TAPS Support

@tapssupport

Non-profit dedicated to raising the profile of #TwinAnemiaPolycythemiaSequence and supporting research. #TAPSisReal #TAPS #raredisease. Awareness day: March 3rd

ID: 1078032161347960833

linkhttp://www.tapssupport.com calendar_today26-12-2018 20:57:50

5,5K Tweet

1,1K Followers

2,2K Following

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Baby Loss Awareness Week begins today. To families in the twin community who have lost a baby, we’re thinking of you. This week we’ll share resources and signpost to specialist partners. On 15 Oct at 7:00 pm, join the Wave of Light if it feels right.  #BLAW2025

Baby Loss Awareness Week begins today. To families in the twin community who have lost a baby, we’re thinking of you. This week we’ll share resources and signpost to specialist partners. On 15 Oct at 7:00 pm, join the Wave of Light if it feels right. 

#BLAW2025
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With Loss Books, we’re proud to launch The Story of My Twin in Dutch. This resource matters for families worldwide, and having it for Dutch speakers means so much. Ordering details are coming soon, plus a project to make copies available for Dutch families. #LossBooks #BLAW2025

With Loss Books, we’re proud to launch The Story of My Twin in Dutch. This resource matters for families worldwide, and having it for Dutch speakers means so much. Ordering details are coming soon, plus a project to make copies available for Dutch families. 
#LossBooks #BLAW2025
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While this information is based on "guesstimates," here's something to consider. Screening for TAPS is not routine, yet we estimate that approximately 60-90 sets of TAPS twins are born each day. Learn more on our website here: bit.ly/3mG2OCy #tapssupport #tapsisreal

While this information is based on "guesstimates," here's something to consider.  Screening for TAPS is not routine, yet we estimate that approximately 60-90 sets of TAPS twins are born each day.  Learn more on our website here: bit.ly/3mG2OCy  #tapssupport #tapsisreal
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Posting on behalf of our partners at Fetal Health Fndn Your insights can help shape better care for families like yours.  Take the survey:  tinyurl.com/FetalCareCente…  Deadline: October 28 Thank you for helping move this work forward, your insight truly matters! #FetalHealth

Posting on behalf of our partners at <a href="/FetalHealthFndn/">Fetal Health Fndn</a> 

Your insights can help shape better care for families like yours.
 Take the survey:   tinyurl.com/FetalCareCente…
 Deadline: October 28

Thank you for helping move this work forward, your insight truly matters!

#FetalHealth
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During #BLAW2025 we share our work with Footprints Baby Loss on peer support for families after loss in multiple pregnancy. It offers understanding, practical ideas and steady listening. Read our statement: sbee.link/ea38dh7qtw Footprints Baby Loss - Twin and Triplet Support #PeerSupport

During #BLAW2025 we share our work with Footprints Baby Loss on peer support for families after loss in multiple pregnancy. It offers understanding, practical ideas and steady listening. Read our statement: sbee.link/ea38dh7qtw  <a href="/footprintsbl/">Footprints Baby Loss - Twin and Triplet Support</a> 
#PeerSupport
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Donor twins are at a high risk of cognitive delays, and deafness. It's really important to advocate for the right care in your pregnancy: bit.ly/3s2JSPm #tapssupport #tapsisreal

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Selective Fetal Growth Restriction happens in many monochorionic twin pregnancies, and is often found in TAPS twins as well. Learn the differences between TTTS, TAPS and SFGR here on our website: bit.ly/3E9rVFv #tapssupport #tapsisreal #SFGR

Selective Fetal Growth Restriction happens in many monochorionic twin pregnancies, and is often found in TAPS twins as well.  Learn the differences between TTTS, TAPS and SFGR here on our website: bit.ly/3E9rVFv #tapssupport #tapsisreal #SFGR
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The Delphi criteria identified more severe cases likely to require intervention, and the delta PSV > 0.373 criteria identified milder cases, without a significant impact on neonatal outcomes. bit.ly/3eaHAZH #tapssupport #tapsisreal

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At 7pm, Amsterdam time, we will join the global wave of light for Baby Loss Awareness Week. Remembering all families touched by loss, and keeping them and their little ones in our hearts. #BLAW2025 #WaveOfLight

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We’re grateful to recognize our partnership with Loss Books and to share that 𝐻𝑒𝑡 𝑣𝑒𝑟ℎ𝑎𝑎𝑙 𝑣𝑎𝑛 𝑚𝑖𝑗𝑛 𝑡𝑤𝑒𝑒𝑙𝑖𝑛𝑔 is now available in Dutch. Loss Books is offering 5% off storewide in October with the code 𝐓𝐀𝐏𝐒𝟏𝟎. Order here: sbee.link/wuev9n8rjq

We’re grateful to recognize our partnership with Loss Books and to share that 𝐻𝑒𝑡 𝑣𝑒𝑟ℎ𝑎𝑎𝑙 𝑣𝑎𝑛 𝑚𝑖𝑗𝑛 𝑡𝑤𝑒𝑒𝑙𝑖𝑛𝑔 is now available in Dutch. Loss Books is offering 5% off storewide in October with the code 𝐓𝐀𝐏𝐒𝟏𝟎. Order here: sbee.link/wuev9n8rjq
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Last chance to register for the PREIS School International Course, Monochorionic Twins: Diagnosis, Prognosis, Perinatal Management and Long-term Outcome, 30–31 October 2025, Florence.Places are limited. Register: sbee.link/p6qrevcgyk

Last chance to register for the PREIS School International Course, Monochorionic Twins: Diagnosis, Prognosis, Perinatal Management and Long-term Outcome, 30–31 October 2025, Florence.Places are limited.   Register: sbee.link/p6qrevcgyk
European Association of Perinatal Medicine (@euperinatal) 's Twitter Profile Photo

2 months left until we meet at the #EAPM course on Complicated #monochorionictwins: #TTS, #TAPS, #sFGR. Limited to 75 participants only. Don't miss out! Register here✅: bit.ly/46IdbwZ #neonatology #obstetrics #perinatology #pediatrics #ultrasound

2 months left until we meet at the #EAPM course on Complicated #monochorionictwins: #TTS, #TAPS, #sFGR.

Limited to 75 participants only. Don't miss out!

Register here✅: bit.ly/46IdbwZ

#neonatology #obstetrics #perinatology #pediatrics #ultrasound
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We're all over social media. From Facebook, to YouTube - we have the latest information on TAPS, twin research and real stories. Don't forget to click follow or visit our website: bit.ly/33eXuNs . #tapssupport #tapsisreal

Kosmas Events (@kosmasevents) 's Twitter Profile Photo

10 Days Left: Master the Management of #MonochorionicTwin Complications! Join international experts in Florence 📆 30-31 October, for an evidence-based course on diagnosing and managing TTS, TAPS, sFGR, and TRAP. ✅ Register to participate: bit.ly/3Cwum97 TAPS Support

10 Days Left: Master the Management of #MonochorionicTwin Complications!

Join international experts in Florence 📆 30-31 October, for an evidence-based course on diagnosing and managing TTS, TAPS, sFGR, and TRAP.
✅ Register to participate: bit.ly/3Cwum97

<a href="/tapssupport/">TAPS Support</a>
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Tweeling anemie polycytemie sequentie (TAPS) is een aandoening die kan voorkomen bij monochoriale tweelingzwangerschappen. Monochoriale tweelingen zijn identiek en delen één placenta. Lees meer:  bit.ly/3qxFKbj #tapssupport #tapsisreal #twinanemiapolycythemiasequence

Tweeling anemie polycytemie sequentie (TAPS) is een aandoening die kan voorkomen bij monochoriale tweelingzwangerschappen. Monochoriale tweelingen zijn identiek en delen één placenta. Lees meer:  bit.ly/3qxFKbj #tapssupport #tapsisreal #twinanemiapolycythemiasequence
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Determining the differences in albumin levels between donors and recipients with twin anemia-polycythemia sequence (TAPS). bit.ly/3mNpsc8 #tapssupport #tapsisreal

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Is it time to rethink TAPS screening? Parents of monochorionic twins are entitled to the information we have about TAPS, including the right to be monitored for it and given treatment options. Learn more about TAPS on our website: bit.ly/3mG2OCy #tapssupport #tapsisreal

Is it time to rethink TAPS screening? Parents of monochorionic twins are entitled to the information we have about TAPS, including the right to be monitored for it and given treatment options. Learn more about TAPS on our website: bit.ly/3mG2OCy #tapssupport #tapsisreal
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What is Twin Anemia Polycythemia Sequence? A rare disease affecting monochorionic twins, it is often underdiagnosed, or worse, a missed diagnosis. It's time to start changing the way we talk about TAPS. Read more on our website: bit.ly/3mG2OCy #tapssupport #tapsisreal

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Twin-Twin Transfusion Syndrome (TTTS) is the most commonly known complication of twins and affects around 15% of these pregnancies. Learn more about the differences between TAPS, SFGR and TTTS on our website here: bit.ly/3E9rVFv #tapssupport #tapsisreal #ttts

Twin-Twin Transfusion Syndrome (TTTS) is the most commonly known complication of twins and affects around 15% of these pregnancies.  Learn more about the differences between TAPS, SFGR and TTTS on our website here: bit.ly/3E9rVFv #tapssupport #tapsisreal #ttts
Kosmas Events (@kosmasevents) 's Twitter Profile Photo

🚨 Final call for registration! 🚨 👉 bit.ly/3Cwum97 In just a few days, international experts gather in #Florence for an intensive course on the complexities of #MonochorionicTwins — from diagnosis to management of TTS, TAPS, sFGR & TRAP. TAPS Support #ObGynTwitter

🚨 Final call for registration! 🚨

👉 bit.ly/3Cwum97

In just a few days, international experts gather in #Florence for an intensive course on the complexities of #MonochorionicTwins — from diagnosis to management of TTS, TAPS, sFGR &amp; TRAP.

<a href="/tapssupport/">TAPS Support</a> #ObGynTwitter