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Very proud that finally our 3 year campaign to ensure there is up-to-date VTE anticoagulation guidance for patients with sickle cell and Thalassaemia with venous access devices is here! Emma Drašar John Brewin onlinelibrary.wiley.com/doi/10.1111/bj… Thrombosis UK BSH - Haematology Sickle Cell Society

Diversity is vital to our charity & nation. #teamukts condemns the recent rioting & stands against any prejudice advocating for inclusion & equality. To our families affected by #thalassaemia, hcps, blood donors & neighbours remember, you are seen, heard & valued ❤️

NHS to offer ‘life-changing’ gene therapy for blood disorder thalassaemia dlvr.it/TBdxc7

We are thrilled to share some exciting news! The NHS will soon offer gene therapy to patients over 12 with transfusion-dependent #Thalassaemia, thanks to NICE's groundbreaking recommendation under the managed access agreement! 🌟

First gene-editing therapy may cure blood disorder; Beta Thalassaemia Major bbc.co.uk/news/articles/…

Our beautiful Kirthana ❤️ Kirthana will be featured on BBC later today!

Delighted to share this great news! Thanks to brilliant leadership Amanda Pritchard samroberts, support from patients & Herculean effort by colleagues across NHS England, NICE MHRAgovuk UK Thalassaemia Society, Casgegy is now available on the NHS for people living with Thalassemia!

Such amazing news! Well done to UK Thalassaemia Society for such hard work in getting this across the line!

Fantastic to hear that NICE have approved gene-editing therapy as a treatment and potential cure for thalassaemia. This will transform the lives of patients with beta-thalassaemia who have to have regular blood transfusions. Well done all at UK Thalassaemia Society for lobbying hard for this

I am not sure I have ever been more excited and happy for any news in my working life. This will be truly life changing and I am so proud of colleagues and friends who kept going until NICE SAID YES!!!

Islington vision for a greener, healthier area between Nag’s Head to York Way recently became a reality! parikiaki.com/2024/08/isling… to offer ‘life-changing’ gene therapy for blood disorder thalassaemia parikiaki.com/2024/08/nhs-to… #Thalassaemia UK Thalassaemia Society

Have you seen this video message from our patron Peter Polycarpou?! If not, you’re in luck! Thanks Peter for all of your support and advocacy of these year! We are grateful to have you on our team! #teamukts

We are holding a patient/ carer meeting on September 16th 6-7pm & we would love to hear about your experiences. What works well for you? What would you like to see improve? You can speak honestly & openly & won’t be identified! Please email [email protected] to register!

We are holding a patient/ carer meeting on September 16th 7-8pm & would ❤️ to hear about your experiences. What works well for you? What would you like to see improve? You can speak honestly & openly & won’t be identified! Please email [email protected] to register!

We are excited to be running a series of Menopause Awareness Sessions with an exclusive focus on Thalassaemia. Starting October 16th Sign up uclh.nhs.uk/theredcellnetw… We are teaming up with Vikram Sinai Talaulikar and Babita from New Chapter Nutrition for Menopause! UK Thalassaemia Society West London HCC Network

Come & work with us! Part-time band 7 clinical/counselling/health psychology post in #sicklecell & #thalassaemia healthjobsuk.com/job/UK/London/… Creative and flexible work in a lovely team where psychology is really valued Elizabeth Rhodes @StGeorgesTrust Sickle Cell Society UK Thalassaemia Society West London HCC Network

18/10 was #MenopauseAwarenessDay & we marked it by launching our education series on Menopause with Thalassaemia! Vikram Sinai Talaulikar gave an insightful talk to kick off the 4-part series which will run every Wednesday till Nov 6th. Catch up on the talk here: uclh.nhs.uk/theredcellnetw…