TIF (@thalassaemiatif) 's Twitter Profile
TIF

@thalassaemiatif

A non-profit organization based in Cyprus advocating for the prevention & treatment of thalassaemia & other haemoglobin disorders & patients' rights worldwide.

ID: 1926071761

linkhttp://www.thalassaemia.org.cy/ calendar_today02-10-2013 07:40:28

2,2K Tweet

7,7K Followers

5,5K Following

AgiosMedical (@agiosmedical) 's Twitter Profile Photo

Attend the sponsored symposium at the 1st TIF Pan-American Conference on Thalassemia and Other Haemoglobin Disorders and 2nd RAIN Summit hosted by TIF & Cooley's Anemia Foundation. Access #Thalassemia resources: bit.ly/3Fyj9qs #AgiosMedical #TIF2025

TIF (@thalassaemiatif) 's Twitter Profile Photo

Think you know #Thalassaemia? 🧠 Think again! Join us on 12 July at the #TIF2025 Conference in D.C. 🔍 “Debunking Thalassaemia Myths” with Dr. Hanny Al-Samkari of Harvard Med. 🙌 Sponsored by Agios #Patients & #Caregivers—don’t miss it! tinyurl.com/3bkv3smy

Think you know #Thalassaemia? 🧠 Think again!

Join us on 12 July at the #TIF2025 Conference in D.C.
🔍 “Debunking Thalassaemia Myths” with Dr. Hanny Al-Samkari of Harvard Med.

🙌 Sponsored by <a href="/AgiosPharma/">Agios</a>
#Patients &amp; #Caregivers—don’t miss it! 
tinyurl.com/3bkv3smy
TIF (@thalassaemiatif) 's Twitter Profile Photo

What an incredible 3 days at the 1st TIF Pan American Conference on #Thalassaemia & #HaemoglobinDisorders in #WashingtonDC! Insightful sessions, lively discussions & the RAIN Summit brought healthcare professionals & patients together to advance care & inspire action. #TIF2025

What an incredible 3 days at the 1st TIF Pan American Conference on #Thalassaemia &amp; #HaemoglobinDisorders in #WashingtonDC!
Insightful sessions, lively discussions &amp; the RAIN Summit brought healthcare professionals &amp; patients together to advance care &amp; inspire action. #TIF2025
TIF (@thalassaemiatif) 's Twitter Profile Photo

🆕 Just Released! TIF’s 2nd Edition of the “Know Your Rights” guide for people with #Thalassaemia & #SCD is HERE! 📘 A must-have for #Patients & #Caregivers 🌐 Backed by intl. law & global #PatientVoices 📲 FREE download thalassaemia.org.cy/publications/t… #KnowYourRights #TIFPublications

🆕 Just Released! TIF’s 2nd Edition of the “Know Your Rights” guide for people with #Thalassaemia &amp; #SCD is HERE! 

📘 A must-have for #Patients &amp; #Caregivers
🌐 Backed by intl. law &amp; global #PatientVoices
📲 FREE download thalassaemia.org.cy/publications/t…

#KnowYourRights #TIFPublications
TIF (@thalassaemiatif) 's Twitter Profile Photo

Intranasal #Fentanyl may offer fast, safe pain relief for adults with #SickleCellDisease, according to a new Canadian study. 📉 60% pain reduction 💡 No major side effects 🏥 Fewer hospital admissions thalassaemia.org.cy/news/sickle-ce… #SCD #Pain #Opioids #PatientCare

TIF (@thalassaemiatif) 's Twitter Profile Photo

👩‍⚕️ The new edition of “A Guide for the Haemoglobinopathy Nurse” by #TIF is out now—updated, practical, and built to support #nurses delivering expert care in #Thalassaemia & #SCD! 📥 Download now: thalassaemia.org.cy/news/empowerin… #Nurses #NursingCare #Haemoglobinopathies

👩‍⚕️ The new edition of “A Guide for the Haemoglobinopathy Nurse” by #TIF is out now—updated, practical, and built to support #nurses delivering expert care in #Thalassaemia &amp; #SCD!

📥 Download now: thalassaemia.org.cy/news/empowerin…

#Nurses #NursingCare #Haemoglobinopathies
TIF (@thalassaemiatif) 's Twitter Profile Photo

🌟 “Truly priceless.” That’s how Dr. Tanzeel Imran 🇵🇰 describes the 2024 TIF #RenzoGalanelloFellowship at UCLH — a unique chance for hands-on training in #Thalassaemia & #Haemoglobinopathies. 🩺 Ready to level up your expertise? 🗓️ Apply by 31 Aug 🔗 thalassaemia.org.cy/.../renzo-gala…

🌟 “Truly priceless.”
That’s how Dr. Tanzeel Imran 🇵🇰 describes the 2024 TIF #RenzoGalanelloFellowship at <a href="/uclh/">UCLH</a> — a unique chance for hands-on training in #Thalassaemia &amp; #Haemoglobinopathies.

🩺 Ready to level up your expertise?
🗓️ Apply by 31 Aug
🔗 thalassaemia.org.cy/.../renzo-gala…
TIF (@thalassaemiatif) 's Twitter Profile Photo

📢 Only 2 days to go! Join the TIF #webinar: Science Serving the Patient — Integrating Innovation, Making it Accessible, Available & Affordable 🗓️ 26 Sept | 13:00 UK · 14:00 IT 🎤 Dr Filomena Longo & Prof John B. Porter 🔗 Register: shorturl.at/NVO0F #Thalassaemia

📢 Only 2 days to go!

Join the TIF #webinar:
Science Serving the Patient — Integrating Innovation, Making it Accessible, Available &amp; Affordable

🗓️ 26 Sept | 13:00 UK · 14:00 IT
🎤 Dr Filomena Longo &amp; Prof John B. Porter
🔗 Register: shorturl.at/NVO0F

#Thalassaemia
TIF (@thalassaemiatif) 's Twitter Profile Photo

📘 The #TIF #AnnualReport2024 is out! A year of resilience & progress advancing care for #thalassaemia & #rareanaemias. 🏆 HemaSphere Award 🤝 WHO relations renewed 🏥 Collaborating Centres 🌍 RAIN & MENA Summits 🔗 Find the full report thalassaemia.org.cy/who-we-are/tif…

📘 The #TIF #AnnualReport2024 is out!

A year of resilience &amp; progress advancing care for #thalassaemia &amp; #rareanaemias.

🏆 HemaSphere Award
🤝 WHO relations renewed
🏥 Collaborating Centres
🌍 RAIN &amp; MENA Summits

🔗 Find the full report thalassaemia.org.cy/who-we-are/tif…
TIF (@thalassaemiatif) 's Twitter Profile Photo

SEVERE APLASTIC ANAEMIA | New research shows that stem cell transplantation (#HSCT) can offer lasting survival—even for patients whose disease transforms into #MDS or #leukaemia. A milestone in care for rare anaemias. 👉 thalassaemia.org.cy/news/saa-stem-… #RAIN

SEVERE APLASTIC ANAEMIA |
New research shows that stem cell transplantation (#HSCT) can offer lasting survival—even for patients whose disease transforms into #MDS or #leukaemia.
A milestone in care for rare anaemias.

👉 thalassaemia.org.cy/news/saa-stem-…

#RAIN
TIF (@thalassaemiatif) 's Twitter Profile Photo

🎉 ECDC celebrated 20 years of safeguarding public health in 🇪🇺! Entering its 3rd decade, ECDC continues to strengthen #Europe’s defences against #InfectiousDiseases. 📺Watch the event: ecdc.europa.eu/en/news-events… #ECDC20 #PublicHealth #HealthSecurity #OneHealth #EUHealth

🎉 <a href="/ECDC_EU/">ECDC</a> celebrated 20 years of safeguarding public health in 🇪🇺!

Entering its 3rd decade, ECDC continues to strengthen #Europe’s defences against #InfectiousDiseases. 

📺Watch the event: ecdc.europa.eu/en/news-events…

#ECDC20 #PublicHealth #HealthSecurity #OneHealth #EUHealth
TIF (@thalassaemiatif) 's Twitter Profile Photo

The #ISNHD–#TIF webinar “Blood Transfusion Safety, Availability & Challenges in the Indian Subcontinent” is set for 19 Nov.! 🕐 13:00 Cyprus | 16:30 India Featuring experts from 🇧🇩 🇮🇳 🇲🇻 🇳🇵 🇵🇰 🇱🇰 Register at: shorturl.at/idCyn #Thalassaemia #HealthEquity #GlobalHealth

The #ISNHD–#TIF webinar “Blood Transfusion Safety, Availability &amp; Challenges in the Indian Subcontinent” is set for 19 Nov.!

🕐 13:00 Cyprus | 16:30 India
Featuring experts from 🇧🇩 🇮🇳 🇲🇻 🇳🇵 🇵🇰 🇱🇰
Register at: shorturl.at/idCyn

#Thalassaemia #HealthEquity #GlobalHealth
TIF (@thalassaemiatif) 's Twitter Profile Photo

It’s time to prioritise #BloodHealth in the #EU! 🩸🇪🇺 In a The Parliament Magazine article, Dr. Androulla Eleftheriou (TIF) & #BloodAndBeyond call for stronger #PBM, innovation & #BloodAdequacy for transfusion-dependent patients. Read it at: ⤵️ theparliamentmagazine.eu/partner/articl…

TIF (@thalassaemiatif) 's Twitter Profile Photo

🏥 TIF experts in Bangkok! On 6–7 Nov, Prof. Antonio Piga & Prof. Kevin Kuo visited Ramathibodi Hospital Hospital, Mahidol University — engaging with #ThalassaemiaCare & #HSCT teams and delivering lectures at the Faculty of Medicine. ➡️ tinyurl.com/5n7t9cnz

🏥 TIF experts in Bangkok!

On 6–7 Nov, Prof. Antonio Piga &amp; Prof. Kevin Kuo visited <a href="/Ramathibodi/">Ramathibodi Hospital</a> Hospital, Mahidol University — engaging with #ThalassaemiaCare &amp; #HSCT teams and delivering lectures at the Faculty of Medicine.

➡️ tinyurl.com/5n7t9cnz
TIF (@thalassaemiatif) 's Twitter Profile Photo

How can #Europe boost innovation & ensure all patients access life-changing #ATMPs? 🎤 On 20 Nov., TRANSFORM & MEPs host “Igniting Innovation: The Future of the ATMP Ecosystem” at European Parliament. Dr. A. Eleftheriou (#TIF) will deliver a Statement. 🔗 lnkd.in/eqFGEuVX

How can #Europe boost innovation &amp; ensure all patients access life-changing #ATMPs?

🎤 On 20 Nov., <a href="/TRANSFORM_CGT/">TRANSFORM</a> &amp; MEPs host “Igniting Innovation: The Future of the ATMP Ecosystem” at <a href="/EUparliament/">European Parliament</a>.

Dr. A. Eleftheriou (#TIF) will deliver a Statement.
🔗 lnkd.in/eqFGEuVX
TIF (@thalassaemiatif) 's Twitter Profile Photo

🩸 EBMT Haemoglobinopathies Working Party Meeting is coming up! Experts in #Thalassaemia & #SCD will gather to share new evidence and advance progress in care. 🎙️ #TIF’s Board Member Loris Brunetta will present the patient perspective on 27 Nov. 🔗ebmt.org/events/haemogl…

🩸 <a href="/TheEBMT/">EBMT</a> Haemoglobinopathies Working Party Meeting is coming up! Experts in #Thalassaemia &amp; #SCD will gather to share new evidence and advance progress in care.

🎙️ #TIF’s Board Member <a href="/LorisBrunetta/">Loris Brunetta</a> will present the patient perspective on 27 Nov.

🔗ebmt.org/events/haemogl…
TIF (@thalassaemiatif) 's Twitter Profile Photo

Today, #TIF welcomed a Chinese delegation to its Nicosia offices for forward-looking discussions on innovation, care, and collaboration in #Haemoglobinopathies. Tonight, TIF and the Beijing AngelMom Charity Foundation will seal their partnership with an #MoU signing. 🤝

Today, #TIF welcomed a Chinese delegation to its Nicosia offices for forward-looking discussions on innovation, care, and collaboration in #Haemoglobinopathies.

Tonight, TIF and the Beijing AngelMom Charity Foundation will seal their partnership with an #MoU signing. 🤝
TIF (@thalassaemiatif) 's Twitter Profile Photo

📢 TIF & Beijing AngelMom Foundation signed an MoU in Nicosia to boost cooperation in advocacy, patient support, and innovation for #Thalassaemia & #Haemoglobin Disorders. 🔗 tinyurl.com/88bx3f2a #MoU #China #Cyprus #PartnershipsInAction

TIF (@thalassaemiatif) 's Twitter Profile Photo

The workshop aligns with #TIF’s updated ''Guide for the Haemoglobinopathy Nurse''—a practical tool for clinical care, psychosocial support & patient empowerment. (2/2) View the Guide:⤵️ thalassaemia.org.cy/publications/t… #Publications #Νurses #NursingEducation #HealthcareProfessionals

The workshop aligns with #TIF’s updated ''Guide for the Haemoglobinopathy Nurse''—a practical tool for clinical care, psychosocial support &amp; patient empowerment. (2/2)

View the Guide:⤵️
thalassaemia.org.cy/publications/t…

#Publications #Νurses #NursingEducation #HealthcareProfessionals