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#DrHerzenberg will speak in a free #Achondroplasia - Medication & Surgery webinar hosted by ALYN PARC, the Helmsley Pediatric & Adolescent Rehabilitation Research Center, on Mon., Sept. 9th at 1:30-3:00 p.m. EDT. To register: parc.alyn.org/alyn-parc-sept…

The Riccardo Servini-directed, Nick Taussig-produced Dwarf Story is one of many great films that will be showcased at the Little Venice Film Festival's Disability Experience screenings at ODEON Luxe West End on October 22nd - between 8am and 12pm. Free tickets are available here:

To honor #DwarfismAwarenessDay we are profiling one of our earliest patients living with #achondroplasia who chose #LimbLengthening at the ICLL. Ryan has been a professional chef for over 17 years & serves as a role model for children living with achondroplasia. #ICLL #dwarfism

World Dwarfism Day may have passed, but we are still feeling the love from our patients from near and far. Thank you to all of our patients who took the time to make these videos! #orthopedics #dwarfism #skeletaldysplasia

We’re thrilled to welcome Dr. Shawn Standard to Nemours Children’s Hospital, Florida! Dr. Standard joins our team to expand the Limb Lengthening & Reconstruction Program alongside Dr. Jason Malone, offering care to children with limb deformities and orthopedic trauma.

We're pleased to announce that positive 18-month results from PROPEL 2, a Phase 2 trial of the investigational therapy infigratinib in children with #achondroplasia, were published as an original research article in the New England Journal of Medicine (NEJM) today. Read more

We were honored to host individuals living with #hypochondroplasia for our recent Hypochondroplasia Community Day. Hearing firsthand about their personal journeys—marked by resilience, strength, and a deep sense of community—was both enlightening and inspiring. These

Be a Voice for Rare Disease Patients! State policies like PDABs can have unintended consequences on rare disease treatments. Register for our March 6 webinar to learn more: bit.ly/PDABwebinar. #RareandReady #PDAB

Today on #RareDiseaseDay, we're proud to join the #raredisease community to raise awareness about the millions of people around the world living with rare conditions. We recognize and celebrate the resilience of individuals living with rare conditions and their loved ones.

Thank you, #ACMGmtg2025, for the incredible opportunity to exhibit and debut Tyra’s BEACH301 clinical trial for children ages 3-10 with achondroplasia. We had engaging conversations & sat in on insightful scientific discussions and presentations. tyra.bio/#optin

Such a great time at ACMG Annual Clinical Genetics Meeting. What a wonderful opportunity to connect with experts in the space and share updates on our achondroplasia and hypochondroplasia programs.

#AbbiskoTherapeutics Announces IND Clearance from the Center for Drug Evaluation (CDE) of the China National Medical Products Administration for #ABSK061, a Highly Selective FGFR2/3 Inhibitor, for the Treatment of #Achondroplasia thechandlerproject.org/2025/03/27/abb…

Connecting with other families living with achondroplasia can be an invaluable source of support. On MyAchonJourney, you’ll find personal insights and perspectives from the community, as well as information on advocacy organizations and programs that help foster meaningful

Interested in exploring advancements in achondroplasia and related conditions? Join the first IAF Workshop 'Beyond Achondroplasia' workshop on the 29th of April from 17:30 BST. Register here 👉 ow.ly/fP7K50VoMo8

We are excited to partner with Tyra Biosciences Biosciences to bring the BEACH301 clinical trial for eligible children with achondroplasia to families in the southeastern US, starting in Atlanta. 🌐 Visit at achondroplasia.bio to learn more. #Achondroplasia

.AscendisPharma Submits U.S. NDA for #TransConCNP (#Navepegritide) for the Treatment of Children with #Achondroplasia thechandlerproject.org/2025/04/01/asc…

Re: BridgeBio Pharma's oral #infigratinib for #achondroplasia: "This is a really promising medicine. If you're teaching trainees about achondroplasia, please don't forget to mention the non-surgical options." – British Society for Children’s Orthopaedic Surgery PODcast Listen here (Spotify): open.spotify.com/episode/4jGQYx…

Did you know that #achondroplasia gets its name from Greek, meaning "without cartilage growth"? Caused by a change in the FGFR3 gene, achondroplasia is the most common type of skeletal dysplasia, occurring in about one in 25,000 people. Although there are some medical

MyAchonJourney is a community-informed resource developed to support families and provide a positive outlook on living life confidently with achondroplasia. Created in close collaboration with patient advocacy leaders and healthcare experts in skeletal dysplasia, this

Heading to PHARMACHON in SF on July 12? Join us alongside The Chandler Project 🦋 to learn about the latest in research developments. bit.ly/3I0McUI