trudy (@trudyflynn_) 's Twitter Profile
trudy

@trudyflynn_

Fibromyalgia, Co-Chair MSSU PPPC & Chair Fibromyalgia Association Canada, PERA alumni CIHR-IMHA, Patient Partner

#Fibromyalgia #FAC #PatientEngagement #MSSU

ID: 999568601739923456

calendar_today24-05-2018 08:31:40

7,7K Tweet

2,2K Followers

2,2K Following

CAPA (@capa_arthritis) 's Twitter Profile Photo

It’s #WorldArthritisDay 💜 People with arthritis know best what helps day to day. Check out our life hacks & assistive devices — practical tips from the community on living well: arthritispatient.ca/en/managing-da… #Arthritis #PatientVoice

It’s #WorldArthritisDay 💜 People with arthritis know best what helps day to day. Check out our life hacks & assistive devices — practical tips from the community on living well: arthritispatient.ca/en/managing-da…

#Arthritis #PatientVoice
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

💜 #FAC is partnering with @onetoonewellness & @peopleinpain_network to bring you a free virtual series on pain self-management for people with #fibromyalgia & chronic pain, and healthcare providers. Register here: fibrocanada.ca/en/pipn-round-… for any or all 3 days

💜 #FAC is partnering with @onetoonewellness & @peopleinpain_network to bring you a free virtual series on pain self-management for people with #fibromyalgia & chronic pain, and healthcare providers.  

Register here: fibrocanada.ca/en/pipn-round-… for any or all 3 days
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

📢#FAC's Peer Support - Qi Gong and Mindfulness with Lynne Hearte. The last one was great!! Living with fibromyalgia can feel overwhelming but connecting with others makes a difference 📅Date: Tuesday, October 21, 2025 ⏰Time: 5 pm ET ➡️Link: fibrocanada.ca/en/de-stress-d…

📢#FAC's Peer Support - Qi Gong and Mindfulness with Lynne Hearte.

The last one was great!! 

 Living with fibromyalgia can feel overwhelming but connecting with others makes a difference 
    
📅Date: Tuesday, October 21, 2025
⏰Time: 5 pm ET 
➡️Link: fibrocanada.ca/en/de-stress-d…
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

Join #FAC & @peopleinpain_network + @onetoonewellness for a 3 day free series Day 1 Join a person with lived experience, a physiotherapist & a psychologist talking about pain self management for care providers & those with chronic pain & fibromyalgia ➡️fibrocanada.ca/en/pipn-round-…

Join #FAC & @peopleinpain_network + @onetoonewellness for a 3 day free series

Day 1
Join a person with lived experience, a physiotherapist & a psychologist talking about pain self management for care providers & those with chronic pain & fibromyalgia 

➡️fibrocanada.ca/en/pipn-round-…
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

#InvisibleDisabilitiesWeek – Day 3 Not all disabilities can be seen. People with #fibromyalgia & other invisible conditions face pain, fatigue & brain fog every day, yet they show incredible strength ➡ Invisible ≠ imaginary ➡ Invisible ≠ easy ➡ Invisible ≠ alone 💜 #FAC

#InvisibleDisabilitiesWeek – Day 3 

Not all disabilities can be seen. People with #fibromyalgia & other invisible conditions face pain, fatigue & brain fog every day, yet they show incredible strength

➡ Invisible ≠ imaginary
➡ Invisible ≠ easy
➡ Invisible ≠ alone 💜

#FAC
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

💜 Invisible Disabilities Week – Day 4 💜 Invisible conditions like fibromyalgia may not be seen, but they are very real. 💫 Let’s replace “You don’t look sick” with “How can I support you?” 💜 #InvisibleDisabilitiesWeek #Fibromyalgia #Listen #Believe #EndTheStigma

💜 Invisible Disabilities Week – Day 4 💜

Invisible conditions like fibromyalgia may not be seen, but they are very real. 💫
Let’s replace “You don’t look sick” with “How can I support you?” 💜
#InvisibleDisabilitiesWeek #Fibromyalgia #Listen #Believe #EndTheStigma
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

Semaine des handicaps invisibles – Jour 4 Les handicaps invisibles comme la #fibromyalgie ne se voient pas, mais ils sont bien réels. Remplaçons « Tu n’as pas l’air malade » par « Comment puis-je te soutenir ? » 💜 #SemaineDesHandicapsInvisibles #Écouter #Croire #AFC

Semaine des handicaps invisibles – Jour 4

Les handicaps invisibles comme la #fibromyalgie ne se voient pas, mais ils sont bien réels. 

Remplaçons « Tu n’as pas l’air malade » par « Comment puis-je te soutenir ? » 💜

#SemaineDesHandicapsInvisibles #Écouter #Croire #AFC
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

Don’t Miss This! Register for one day or all 3! fibrocanada.ca/en/pipn-round-… 🗓️ Day 1: Hear from a peer support leader, physiotherapist & psychologist on the importance of interdisciplinary care in managing fibromyalgia & chronic pain. #FAC #PIPN #Onetoonewellness P.A.I.N

Don’t Miss This!

Register for one day or all 3! 

fibrocanada.ca/en/pipn-round-…

🗓️ Day 1: Hear from a peer support leader, physiotherapist & psychologist on the importance of interdisciplinary care in managing fibromyalgia & chronic pain.

#FAC #PIPN #Onetoonewellness <a href="/PAINcanada/">P.A.I.N</a>
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

💜 Invisible Disabilities Week – Day 5 💜 Not all pain can be seen. Invisible disabilities like #fibromyalgia are often misunderstood and stigmatized. ➡ Listen ➡ Believe ➡ Support Empathy matters 💜 #InvisibleDisabilitiesWeek #InvisibleButReal #EndTheStigma

💜 Invisible Disabilities Week – Day 5 💜

Not all pain can be seen. Invisible disabilities like #fibromyalgia are often misunderstood and stigmatized.

➡ Listen
➡ Believe
➡ Support

Empathy matters 💜

#InvisibleDisabilitiesWeek #InvisibleButReal #EndTheStigma
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

💜 Semaine des handicaps invisibles – Jour 5 Toute la douleur ne se voit pas. Les handicaps invisibles comme la #fibromyalgie sont souvent mal compris et stigmatisés ➡ Écouter ➡ Croire ➡ Soutenir L’empathie compte 💜 #SemaineDesHandicapsInvisibles #InvisibleMaisRéel #AFC

💜 Semaine des handicaps invisibles – Jour 5

Toute la douleur ne se voit pas. Les handicaps invisibles comme la #fibromyalgie sont souvent mal compris et stigmatisés

➡ Écouter
➡ Croire
➡ Soutenir

L’empathie compte 💜

#SemaineDesHandicapsInvisibles #InvisibleMaisRéel #AFC
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

🌟 Day 2 – Don’t Miss It! 🌟 Hear from a person with lived experience, a Nurse Practitioner & a Pain Science Physiotherapist on interdisciplinary care in #fibromyalgia & #chronicpain ➡ Register: fibrocanada.ca/en/pipn-round-… #FAC People in Pain (PIPN) P.A.I.N Chronic Pain Centre of Excellence

🌟 Day 2 – Don’t Miss It! 🌟

Hear from a person with lived experience, a Nurse Practitioner &amp; a Pain Science Physiotherapist on interdisciplinary care in #fibromyalgia &amp; #chronicpain

➡ Register: fibrocanada.ca/en/pipn-round-…

#FAC <a href="/Peoplepain/">People in Pain (PIPN)</a>  <a href="/PAINcanada/">P.A.I.N</a>  <a href="/chronicpainCOE/">Chronic Pain Centre of Excellence</a>
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

💜 Invisible Disabilities Week – Day 6 💜 Not all struggles can be seen. Invisible disabilities like #fibromyalgia remind us to: ➡️Ask, not assume ➡️Support, not judge ➡️Believe, not doubt #InvisibleDisabilitiesWeek #EmpathyMatters #InvisibleButReal #EndTheStigma

💜 Invisible Disabilities Week – Day 6 💜

Not all struggles can be seen.
Invisible disabilities like #fibromyalgia remind us to:

➡️Ask, not assume
➡️Support, not judge
➡️Believe, not doubt

#InvisibleDisabilitiesWeek #EmpathyMatters #InvisibleButReal #EndTheStigma
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

💙#POTSAwarenessDay #POTS affects circulation & the autonomic nervous system cause dizziness, a racing heart, fatigue, and the possibility of fainting POTS often co-occurs with #Fibromyalgia, making symptoms of both conditions more difficult to manage #Awarenessmatters #FAC

💙#POTSAwarenessDay

#POTS  affects circulation &amp; the autonomic nervous system cause dizziness, a racing heart, fatigue, and the possibility of fainting

POTS often co-occurs with #Fibromyalgia, making symptoms of both conditions more difficult to manage

#Awarenessmatters #FAC
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

💜 Invisible Disabilities Week – Final Day 💜 As the week ends, let’s keep the conversation going. Invisible doesn’t mean forgotten or judged. 💜 #InvisibleDisabilitiesWeek #Fibromyalgia #EndTheStigma #Listen #Believe #YouAreNotAlone Invisible Disabilities Association

💜 Invisible Disabilities Week – Final Day 💜

As the week ends, let’s keep the conversation going.
Invisible doesn’t mean forgotten or judged. 💜

#InvisibleDisabilitiesWeek #Fibromyalgia #EndTheStigma #Listen #Believe #YouAreNotAlone
<a href="/InvDisabilities/">Invisible Disabilities Association</a>
Fibromyalgia Association Canada (@fibrocanada) 's Twitter Profile Photo

🌟 Day 2 – Don’t Miss It! Hear from a person with lived experience, a Nurse Practitioner & a Pain Science Physiotherapist on interdisciplinary care in #fibromyalgia & #chronicpain fibrocanada.ca/en/pipn-round-… #FAC People in Pain (PIPN) P.A.I.N Chronic Pain Centre of Excellence

🌟 Day 2 – Don’t Miss It! 

Hear from a person with lived experience, a Nurse Practitioner &amp; a Pain Science Physiotherapist on interdisciplinary care in #fibromyalgia &amp; #chronicpain

 fibrocanada.ca/en/pipn-round-…

#FAC <a href="/Peoplepain/">People in Pain (PIPN)</a> <a href="/PAINcanada/">P.A.I.N</a>  <a href="/chronicpainCOE/">Chronic Pain Centre of Excellence</a>
CAPA (@capa_arthritis) 's Twitter Profile Photo

🧠 Live with or care for someone with a skin, hair, or nail condition? We want to hear from you! 📋 Take our 5–10 min survey 🎁 Enter to win 1 of 4 $50 gift cards 🔗 EN: forms.office.com/r/v9brxLUs0S 🔗 FR: forms.office.com/r/5RhydfYpJM #SkinHealth #MentalHealth #CSPA #PatientVoices

🧠 Live with or care for someone with a skin, hair, or nail condition? We want to hear from you!

📋 Take our 5–10 min survey
🎁 Enter to win 1 of 4 $50 gift cards

🔗 EN: forms.office.com/r/v9brxLUs0S
🔗 FR: forms.office.com/r/5RhydfYpJM

#SkinHealth #MentalHealth #CSPA #PatientVoices
PxP (@pxphub) 's Twitter Profile Photo

What are some unique challenges and opportunities for patient engagement in research in different parts of the world? 👀Watch back this session from day 1 of #PxP25 youtu.be/xJwAKSoHGNs

Solutions for Kids in Pain (@kidsinpain) 's Twitter Profile Photo

Unmanaged pain is a patient safety issue. Watch HSO’s World Patient Safety Day webinar: tinyurl.com/4aecwdku Help close the gap for kids in pain! Take action here: tinyurl.com/3x5zr2uw #ItDoesntHaveToHurt #CPSW2025 Dr. Katie Birnie

Unmanaged pain is a patient safety issue.

Watch HSO’s World Patient Safety Day webinar:
tinyurl.com/4aecwdku

Help close the gap for kids in pain! Take action here: tinyurl.com/3x5zr2uw

#ItDoesntHaveToHurt #CPSW2025 <a href="/katebirnie/">Dr. Katie Birnie</a>
PxP (@pxphub) 's Twitter Profile Photo

Learn more about different roles of patient partners in health research from this insightful session at #PxP25. 👉The recording is available here to watch any time: youtube.com/watch?v=MWXZXC…