Timothy Syndrome Alliance (TSA)
@tsa_charity
Dedicated to improving the diagnosis, treatment & care of those living with #CACNA1C-related disorders inc. #TimothySyndrome and #LongQT8.
@cacna1c.bsky.social
ID: 1327351012244545541
https://linktr.ee/cacna1c 13-11-2020 20:42:10
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349 Followers
1,1K Following
1st October is #CACNA1C Awareness Day. Check out the reel from Timothy Syndrome Alliance (TSA) for more information on this rare genetic condition and its impact on children and families. #CACNA1C. ➡️instagram.com/p/DAkKndpy2l1/
Today is #CACNA1C Awareness Day. We are joining our member, Timothy Syndrome Alliance (TSA), in raising #awareness. Please help by sharing their video so others can learn about the #RareCondition.
Today is CACNA1C Awareness Day, 1 Oct. Take a look at the awareness video and faces of the community Timothy Syndrome Alliance (TSA) #PLWRD #Rare #Awareness
Today is CACNAC1C Awareness Day youtube.com/shorts/QQUTPC5… - our colleagues at The Timothy Syndrome Alliance have shared this video with us to raise awareness of this neurodevelopmental disease. Help us spread the word! Elizabeth Blackwell Institute Timothy Syndrome Alliance (TSA)
To cap off an amazing #CACNA1C #AwarenessDay today we are delighted to share fantastic grant award news as we join the Chan Zuckerberg Initiative CZI #RareAsOne Network. chanzuckerberg.com/blog/internati… #RareDisease #Research #Collaboration #Advocacy Cardiff University Neuroscience & Mental Health @JFGUnderwood
The importance of #engagement with #patients and #families from a #research perspective. To stream the film in full, a collaboration between TSA and Cardiff University visit the link in our bio. @neuroscienceecu #CACNA1C #TimothySyndrome #LongQT8 #RareDiseases