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It is now the policy of the Government that our NHS is broken. It will be the mission of my department, every member of this government, and the 1.4 million people who work in the NHS, to turn our health service around. That work starts now.

SCN1A Horizons officially open at Leeds Children's Hospital - if you have a patient with an SCN1A mutation and seizures in North, East or West Yorkshire and they are not with the Paediatric Neurology service please let us know.

We talk a lot about acute migraine treatments (that are taken to stop or shorten attacks when they occur), & preventive treatments that aim to reduce the frequency and severity of attacks, but what about the things that actually help us to ✨get through it✨?

Many of us will have things we do to help bring comfort during a migraine attack, or to help while we wait for acute treatments to take effect. This could include: -Hot or cold packs -Weighted blankets -Essential oils -Ear plugs.

When a child with epilepsy ages out of pediatric healthcare, the shift to adult epilepsy care can be complex. In a recent #ILAE #SharpWavesPodcast, Dr. Danielle Andrade spoke about the importance of transition care in #epilepsy. ilae.org/podcast/transi… yesILAE

Key point: "In patients with the developmental & epileptic encephalopathies (DEEs) analyzed, fenfluramine was associated with clinically significant reduction of generalized tonic–clonic seizures or tonic–clonic seizures from baseline." Epilepsia: doi.org/10.1111/epi.18…

More importantly have their back and they’ll have yours! 3am on a ward can be very lonely or a gossip session with a night saving cuppa between patients.

I might be a touch tired!!!

New McDonald Criteria for diagnosis MS. Xavier Montalban: New criteria includes RIS under certain circumstances, central vein sign, neurofilament light chain and optic nerve. #ECTRIMS2024

make sure you check out this great learning opportunity 👇🏻 #Dravet

Shaun Lintern And that’s the thing , the developmental delay will be not fully reversible in some cases. It is outrageous.

Applications are open for the Leeds Paediatric Fellowship: jobs.nhs.uk/candidate/joba…

nice.org.uk/guidance/gid-t… Great news from the NICE appeal. Hoping UCB News can get this across the line! It’s been an absolutely honour working with UCB to try and bring Fenfluramine to patients living with Lennox-Gastaut Syndrome in the UK.

Sometime the work stuff can be really geeky and cool

Introducing the third of our of six 'mini-guides' for families living with Dravet Syndrome. This guide focuses on eating, drinking, and swallowing, tube feeding, and digestion and toileting. Download your copy here ➡️ bit.ly/3UQ0YRw #DravetAwareness #DravetSyndrome

Big News! We are recruiting for a new Consultant Neurologist to join our Epilepsy team here at the RVI, Newcastle Neurosciences @ NuTH Amazing team, great region - take a look beta.jobs.nhs.uk/candidate/joba… ILAE BRITISH BRANCH Neurology Trainees Association of British Neurologists

Anyone who has ever worked there wouldn’t disagree. Well deserved Bradford Neonatal Service