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Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! Question CF Evidence Based Child Health cf/Aware ThoraxBMJ Cystic Fibrosis Trust

Great to see this poster up at #BTSWinter2022: results of a national #CFHealthHub survey to understand the experiences of adults with #cysticfibrosis of obtaining repeat supplies of nebulised medicines. Well done Amanda Dr Sophie Dawson Jamie Hall et al! UK CFPG ACPCF

Might be of interest UK CFPG UKCPA Respiratory Committee

Might be of interest UK CFPG Euro CF Pharmacy Group UKCPA Respiratory Committee

New job alert! Fantastic opportunity to join Cystic Fibrosis Unit NUH as Local CFHealthHub Behaviour Change Lead in cystic fibrosis Cystic Fibrosis Unit NUH 👉 bit.ly/415rYhe Please DM me for more info!😃 ACPCF BPS DHP UK CFPG CF BDA Specialist Group, CF Dietitians NUH Therapies ResearchNUH NUHRespiratory Cystic Fibrosis Trust

Two of our own and best authoring this

NEW EPISODE - Cystic Fibrosis A joyful story this week when we chat to Louise Jenkins - who has cystic fibrosis - about growing up and trying to lead a normal life with this serious and unforgiving condition and the transformative effects of recent innovations in drug therapy.

If anyone from the UK CFPG group is struggling to access the NHS Networks message board on the previous website, please see the link to the new website on NHS Networks twitter feed. If you scroll down the page on their new website, it offers a link to the old website.

A refresh of the top 10 research priorities in cystic fibrosis | Thorax thorax.bmj.com/content/early/…

CFTR modulators for ‘non-approved’ variants - a compassionate use programme in France…a huge need for a similar programme in the UK NHS England UK CFPG Cystic Fibrosis Trust

NEW publication!📢📢 Delighted that the first empirical study from my doctorate has been published in the Psychology & Health journal today (first 50 online copies free) @HealthPsyStaffs Cystic Fibrosis Unit NUH Dr Jenny Taylor @tandfpsychology #ProfDoc #Healthpsych 👉 tandfonline.com/doi/full/10.10…

Great to see Rianna flying the flag for pharmacy technicians delivering research on CF

Christian is a #pharmacist. He can do a #genetic test for children with cystic fibrosis. That test means he can prescribe antibiotics with confidence. It's another example of how #genomics is changing the way #pharmacists work. 🧬👉bit.ly/48tHIP5 #WorldPharmacistsDay

Happy World Pharmacists Day - especially to all of the wonderful pharmacists dedicated to providing the best possible care to people with CF (And ideally to making them smile sometimes)

We will be commenting UK CFPG as registered stakeholders, but encourage all group members to read and comment on the guidance

Thanks Cystic Fibrosis Trust for a great workshop on CF & ageing (and a yummy lunch!) Coming home with lots of new research ideas💡Cystic Fibrosis Unit NUH NUH Pharmacy UK CFPG #RespIsBest

Yes! Excellent UK CFPG UKCPA Respiratory Committee Clare Horton-Smith Bryony Miller Natasha Hudson NUH Pharmacy

Good to see representatives from UK CFPG at the Cystic Fibrosis Trust MDT share and learn conference in Leeds today

Listen from 54:04 to hear Hannah, a parent of a child with CF, Amber, a student with CF, and our Director of Medical Affairs Dr Keith Brownlee talk about the difficulties many are having sourcing Creon on BBC Radio 5 Live ➡️ ow.ly/pt4W50SaJAE #cysticfibrosis #cfnews #creon

So pleased to present the results of part 2 of the AtOM CF Study at European Cystic Fibrosis Society #ECFS2024 thanks to all the patients who took part from Cystic Fibrosis and CFAdultNewcastle National Institute for Health and Care Research @MedicinesDavid Dr Ian Kellar Nikki Rousseau