
Victoria Wareham
@v_wareham
Director of Operations and Development @DystoniaUK on a mission to give hope and support to everyone living with dystonia and raise awareness. Views are my own.
ID: 1351685553562005504
20-01-2021 00:18:52
37 Tweet
48 Followers
154 Following

Next stop... Liverpool! Fantastic to be here sharing a VIP screening of Dystonia UK’s #DystoniaAnimated Episode 2 with a very special audience. Can’t wait for the full launch soon & looking forward to heading to The Brain Charity later on today! #TeamOnTour #DystoniaAwarenessMonth


Next stop... Wrexham! Super impressive seeing @IpsenGroup’s building lit up in our iconic dystonic green for #DystoniaAwarenessMonth. Special thanks to our taxi driver / star photographer for capturing so many shots of me and Dayna Ferdinandi (She/Her) representing Dystonia UK. #TeamOnTour


Wishing all the incredible TCS London Marathon runners today the best of luck! Special thanks to the fantastic team of Dystonia UK team of runners taking on the challenge too! Will be virtually cheering you all on! #TeamDystoniaUK #DystoniaAwarenessMonth #NeurologicalCondition

So proud to see this out in the world! #DystoniaAnimated was created by Dystonia UK to help support kids, carers & families living with dystonia navigate all aspects of life. Bought to life so beautifully by Add2bee Creative episode 2 captures how super support squads are made!


Misty morning walks today. Every mile matters for Dystonia UK’s #DystoniaAroundTheWorldChallenge. #DystoniaMatters #MochiAndMe


Really nice to make the most of my temporary living situation with a Folkestone (Kent) meet up with the Dystonia UK team today. Exciting campaign planning in the works...!

Another day, another corner of Kent! Beautiful drive up to Maidstone and a great meeting with our fantastic group coordinator here. Feels like Dystonia UK’s September #TeamOnTour all over again!


So proud of all the work behind the scenes from the Dystonia UK team that has gone into launching this. Huge thanks for all their hard work & support! Thanks to Add2bee Creative too for being amazing as always!DonateOnePound.org #JustOnePound #DystoniaUK #DystoniaCommunity

Great to dust those January cobwebs away with a sunny afternoon work walk/call with Dayna Ferdinandi (She/Her) #TheseBootsWereMadeForMuddyPuddles


I've signed the The Neurological Alliance petition, calling for UK governments to urgently establish a Neuro Taskforce. tinyurl.com/BackThe1in6 #BackThe1in6 This is a hugely valuable piece of work I’ve been involved in for Dystonia UK with The Neurological Alliance and others. Please support and sign!








Incredibly proud to attend the Parliamentary Neuro Reception today on behalf of Dystonia UK & The Neurological Alliance. A great chance to talk to MPs about challenges the dystonia community face & the overlap with other conditions, ensuring as many MPs as possible speak up on these issues.