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Next stop... Liverpool! Fantastic to be here sharing a VIP screening of Dystonia UK’s #DystoniaAnimated Episode 2 with a very special audience. Can’t wait for the full launch soon & looking forward to heading to The Brain Charity later on today! #TeamOnTour #DystoniaAwarenessMonth

Next stop... Wrexham! Super impressive seeing @IpsenGroup’s building lit up in our iconic dystonic green for #DystoniaAwarenessMonth. Special thanks to our taxi driver / star photographer for capturing so many shots of me and Dayna Ferdinandi (She/Her) representing Dystonia UK. #TeamOnTour

Wishing all the incredible TCS London Marathon runners today the best of luck! Special thanks to the fantastic team of Dystonia UK team of runners taking on the challenge too! Will be virtually cheering you all on! #TeamDystoniaUK #DystoniaAwarenessMonth #NeurologicalCondition

So proud to see this out in the world! #DystoniaAnimated was created by Dystonia UK to help support kids, carers & families living with dystonia navigate all aspects of life. Bought to life so beautifully by Add2bee Creative episode 2 captures how super support squads are made!

And just like that #DystoniaAwarenessMonth is over. 9 cities for #TeamOnTour, 1 #DystoniaMatters, 100 miles for #DystoniaAroundTheWorld, 1 live #ReachOutReachAll webinar, 2 lit up landmarks, 1 #DystoniaAnimated ep launched & 3 amazing colleagues helping make this & more happen!

Misty morning walks today. Every mile matters for Dystonia UK’s #DystoniaAroundTheWorldChallenge. #DystoniaMatters #MochiAndMe

Really nice to make the most of my temporary living situation with a Folkestone (Kent) meet up with the Dystonia UK team today. Exciting campaign planning in the works...!

Another day, another corner of Kent! Beautiful drive up to Maidstone and a great meeting with our fantastic group coordinator here. Feels like Dystonia UK’s September #TeamOnTour all over again!

Today’s the day, #MyNeuroSurvey has launched! In 2019 over 10,000 people with neurological conditions including over 500 with dystonia. Hoping even more take part this time around so we can continue to fight for what’s important for people living with dystonia. #DystoniaMatters

So proud of all the work behind the scenes from the Dystonia UK team that has gone into launching this. Huge thanks for all their hard work & support! Thanks to Add2bee Creative too for being amazing as always!DonateOnePound.org #JustOnePound #DystoniaUK #DystoniaCommunity

Great to dust those January cobwebs away with a sunny afternoon work walk/call with Dayna Ferdinandi (She/Her) #TheseBootsWereMadeForMuddyPuddles

I've signed the The Neurological Alliance petition, calling for UK governments to urgently establish a Neuro Taskforce. tinyurl.com/BackThe1in6 #BackThe1in6 This is a hugely valuable piece of work I’ve been involved in for Dystonia UK with The Neurological Alliance and others. Please support and sign!

We #BackThe1in6. Will you? Join us in calling on all UK Governments to work together to create a Neuro Taskforce and improve services for the one in six people in the UK living with a neuro condition. Sign & share our petition now. Follow this link: tinyurl.com/BackThe1in6

Invite your MP: on 5 June we’re handing in the #BackThe1in6 petition and holding an event in Parliament. Help make sure as many MPs as possible come and show their support for people affected by neurological conditions. Learn more here bit.ly/3pYRmHN

It's now officially #DystoniaAwarenessMonth! A whole month dedicated to raising awareness of #dystonia & the ~100,000 people living with dystonia in the UK. You can help spread the word that #DystoniaMatters with a like, share or repost. #DystoniaAwarenessMonth... let's do this!

To mark the start of #DystoniaAwarenessMonth, last night landmarks across the UK lit up in green. #Dystonia is a neuro condition causing uncontrollable muscle spasms. #DystoniaMatters because it affects ~100,000 people in the UK & has no cure. Learn more dystonia.org.uk

September, simply the start of Autumn for most, but for me it’s the start of Dystonia Awareness Month. Lack of awareness can lead to long journey times for diagnosis, isolation and stigma. So please, if you don’t know what dystonia is watch this short video to find out!

Over 50 charities have joined together to write to the Secretary of State for the Department of Health and Social Care about how people affected by a neurological condition struggle to access mental health services.

If you believe, like we do, that everyone deserves access to the right care, treatment and support at the right time, no matter who you are or where you live then ask your next MP to become a #NeuroChampion now: bit.ly/NeuroChampion #Dystonia #DystoniaUK #BackThe1in6

Incredibly proud to attend the Parliamentary Neuro Reception today on behalf of Dystonia UK & The Neurological Alliance. A great chance to talk to MPs about challenges the dystonia community face & the overlap with other conditions, ensuring as many MPs as possible speak up on these issues.