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Please attend this workshop 6/22, and help bring good clinical trials to benefit people living with sickle cell disease to the Houston area!

We are a country with an open wound. None of us can turn away. None of us can be silent. None of us any longer can hear those words — “I can’t breathe” — and do nothing. We must commit, as a nation, to pursue justice with every ounce of our being.

Unprecedented, historic corruption: an American president commutes the sentence of a person convicted by a jury of lying to shield that very president.

Congrats Vivien Sheehan Aflac Cancer and Blood Disorders Center !!

Here at ASH2022 in New Orleans; excellent talk today on cost of gene therapy in sickle cell disease; we must analyze distributional cost effectiveness not just cost effectiveness. #ASH22 #SCD #genetherapy

Emory University School of Medicine/Aflac representing at ASH; two pictures needed to get us all in! #ASH22

Outstanding poster from Beam Therapeutics at ASH! #ASH22 #SCD #GeneTherapy

ASH has adopted the term "classical hematology," in place of what was formerly referred to as "benign" or "nonmalignant." Discoveries within #classicalheme have significantly advanced the field & continue to better the lives of those living with non-cancerous blood disorders. 1/2

Doctors at a major US insurance company deny tens of thousands of claims a month without even looking at patients’ files. “We literally click & submit,” a former Cigna doctor told @ProPublica & The Capitol Forum. “It takes all of 10 seconds to do 50 at a time.” The inside story 🧵

Outstanding meeting of the ASH Committee on Communications! Always inspired by people so engaged in improving the lives of hematology patients! ♥️🩸

Gene therapy is big news! bbc.in/478lz7X and a major advance for patients with sickle cell disease (SCD) & thalassemia. But in some recent trials, a small number of patients developed blood cancer. Our study (out in Nature Medicine ) asked why... nature.com/articles/s4159…

There's nothing humorous about this. Once again, comedians believe it's OK to mock #SickleCell, a painful, debilitating, often unpredictable disease. Also, get your facts straight Saturday Night Live - SNL, SCD CAN and does occur in families of all racial backgrounds. SCD is not your punchline

I have an idea NBC News and Saturday Night Live - SNL. Let me come talk on camera about #SickleCell and these #Amazing #transformative new therapies for #SickleCellAwareness. We can do an open dialogue on #genetherapy and commercial proceeds can go to National Alliance of Sickle Cell Centers to help pay for this $$ treatment

SCDAA is disappointed by the Saturday Night Live - SNL skit about the recent historic approvals of potentially curative gene therapies for #SCD. SNL chose to cast a spotlight on this news with a tone-deaf skit that is distasteful at best and harmful at worst. Read more: buff.ly/3Rv3Uk5

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I’ll be hiking the Rocky Mountains in partnership with the MTS Foundation in September to raise money to support Sickle Forward’s efforts to screen for sickle cell disease in west Africa; we would really appreciate your support! Please see the link below! givebutter.com/SummitsforSick…

givebutter.com/SummitsforSick…