SRNA (@wearesrna) 's Twitter Profile
SRNA

@wearesrna

The Siegel Rare Neuroimmune Association advocates for people with rare neuroimmune disorders (ADEM, AFM, MOGAD, NMOSD, ON, and TM).

ID: 88498011

linkhttp://www.wearesrna.org calendar_today08-11-2009 20:10:59

4,4K Tweet

1,1K Followers

143 Following

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Join SRNA’s Support Group Meetings for connection and resources if you’re living with or supporting someone affected by ADEM, AFM, MOGAD, NMOSD, ON, or TM. Learn more and register at srna.ngo/events.

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Join us on August 17 at Monroe Field in Port Angeles for the 2025 Olympic Walk-Run-N-Roll! Your participation supports research and education for rare neuroimmune disorders. Save the date and bring your friends! Learn more and join us at srna.ngo/2025-olympic

Join us on August 17 at Monroe Field in Port Angeles for the 2025 Olympic Walk-Run-N-Roll! Your participation supports research and education for rare neuroimmune disorders. Save the date and bring your friends! Learn more and join us at srna.ngo/2025-olympic
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New podcast episode! Join Dr. Matthew Bellman and Dr. GG deFiebre as they discuss Functional Electrical Stimulation (FES) and its potential to improve mobility and manage spasticity. Tune in at srna.ngo/fes-101

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If you have been diagnosed with AFM, you may not know anyone else with this rare disorder. But you are not alone. SRNA's Community has over 15,000 members who share a similar diagnosis. We are here for you. Join SRNA’s community today at wearesrna.org/join

If you have been diagnosed with AFM, you may not know anyone else with this rare disorder. But you are not alone. SRNA's Community has over 15,000 members who share a similar diagnosis. We are here for you. Join SRNA’s community today at wearesrna.org/join
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Thank you for joining us for AFM Awareness Month! We celebrated connections, shared inspiring stories, and hosted our Quality of Life Family Camp. Together, we can navigate AFM and support each other. Read more at srna.ngo/2025-afm-highl…

Thank you for joining us for AFM Awareness Month! We celebrated connections, shared inspiring stories, and hosted our Quality of Life Family Camp. Together, we can navigate AFM and support each other. Read more at srna.ngo/2025-afm-highl…
SRNA (@wearesrna) 's Twitter Profile Photo

How much function can you regain after an #AFM diagnosis? During our 2023 AFM Together event, Dr. Grace Gombolay, alongside Dr. Cristina Sadowsky, answers questions about rehabilitation, treatments, and more. 🎧 Listen to the full talk at: srna.ngo/afm-gombolay #ThisIsAFM

How much function can you regain after an #AFM diagnosis?

During our 2023 AFM Together event, Dr. Grace Gombolay, alongside Dr. Cristina Sadowsky, answers questions about rehabilitation, treatments, and more. 

🎧 Listen to the full talk at: srna.ngo/afm-gombolay
#ThisIsAFM