WFH (@wfhemophilia) 's Twitter Profile
WFH

@wfhemophilia

The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.

ID: 92999953

linkhttp://www.wfh.org calendar_today27-11-2009 16:30:38

4,4K Tweet

7,7K Followers

170 Following

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🌍 The WFH Humanitarian Aid team hosted a workshop in #Cambodia on novel therapies in #hemophilia inhibitor management—bringing together 39 healthcare professionals from 12 countries. Thanks to Len Valentino, Cesar A. Garrido, Mark Skinner & Brian O Mahony for joining.

🌍 The WFH Humanitarian Aid team hosted a workshop in #Cambodia on novel therapies in #hemophilia inhibitor management—bringing together 39 healthcare professionals from 12 countries. Thanks to <a href="/LenValentino1/">Len Valentino</a>, <a href="/cesargarridod/">Cesar A. Garrido</a>, <a href="/MSkinnerDC/">Mark Skinner</a> &amp; <a href="/Brianhemophilia/">Brian O Mahony</a> for joining.
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🌍 In April, 18 inspiring young leaders from 17 countries gathered in Dubai for the WFH Global Youth Leadership Training! 🌟This biennial event empowers future leaders of our NMOs with the skills needed to drive sustainable growth and impact. Read more: bit.ly/43HMIy1

🌍 In April, 18 inspiring young leaders from 17 countries gathered in Dubai for the WFH Global Youth Leadership Training! 🌟This biennial event empowers future leaders of our NMOs with the skills needed to drive sustainable growth and impact. Read more: bit.ly/43HMIy1
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Martin grew up facing challenges that many with #BleedingDisorders know too well—being held back, misunderstood, and excluded. His story highlights the urgent need for greater awareness, education, and support for children with BDs. 🎥 Learn more: bit.ly/4ddMPFT

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🧪 The new Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual is now available! This updated resource features the latest in diagnostic tools, treatment monitoring, and protocols for #BleedingDisorders. Download now: bit.ly/4dOmgHP

🧪 The new Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual is now available! This updated resource features the latest in diagnostic tools, treatment monitoring, and protocols for #BleedingDisorders. Download now: bit.ly/4dOmgHP
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#Hemophilia care in Thailand has evolved over 50 years. Despite limited resources, the country has successfully implemented home treatment, nationwide registries, and innovative solutions.🩸Read more: bit.ly/4kTgx5x

#Hemophilia care in Thailand has evolved over 50 years. Despite limited resources, the country has successfully implemented home treatment, nationwide registries, and innovative solutions.🩸Read more: bit.ly/4kTgx5x
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The WFH Twinning Program brings hope to communities where #BleedingDisorders often go undiagnosed. A recent visit to eastern Uganda reminded one family they’re not alone. 💙 Watch the story: bit.ly/3EqZCI5

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🌍 In low-income countries, only 8% of people with #hemophilia are properly diagnosed—leaving countless individuals without the care they need to live safe, healthy lives. 🩸 With your help, we can change that. Donate today: bit.ly/4d4o0LL

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🧬A new review explores the science behind #GeneTherapy for #hemophilia A & B—from early breakthroughs to approved AAV-based treatments. It also dives into key challenges like immune response & durability. Read the article: bit.ly/45QCRbQ

🧬A new review explores the science behind #GeneTherapy for #hemophilia A &amp; B—from early breakthroughs to approved AAV-based treatments. It also dives into key challenges like immune response &amp; durability. Read the article: bit.ly/45QCRbQ
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The full GPAS program is live! From advancing health equity to expanding access to treatment, this is your opportunity to connect, learn & share strategies to improve equitable care for the #BleedingDisorders community. Explore the program: bit.ly/3Sto8eZ #GPAS2025

The full GPAS program is live! From advancing health equity to expanding access to treatment, this is your opportunity to connect, learn &amp; share strategies to improve equitable care for the #BleedingDisorders community. Explore the program: bit.ly/3Sto8eZ #GPAS2025
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The WFH recently visited #Guinea for an NMO Capacity Development workshop. As a new NMO, having joined the WFH in 2024, the team worked together to develop key priorities and an action plan to strengthen capacity and support the #BleedingDisorders community in the country.

The WFH recently visited #Guinea for an NMO Capacity Development workshop. As a new NMO, having joined the WFH in 2024, the team worked together to develop key priorities and an action plan to strengthen capacity and support the #BleedingDisorders community in the country.
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🧬 A new article looks at the future potential of hashtag#GeneTherapy for hashtag#hemophilia—its promise, real-world challenges like cost & access, and emerging alternatives to AAV, including lentiviral & B-cell-based approaches. Read the article: bit.ly/4mYSeoP

🧬 A new article looks at the future potential of hashtag#GeneTherapy for hashtag#hemophilia—its promise, real-world challenges like cost &amp; access, and emerging alternatives to AAV, including lentiviral &amp; B-cell-based approaches. Read the article: bit.ly/4mYSeoP
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🩸 Help improve #hemophilia care! The WFH Shared Decision Making (SDM) Tool supports informed treatment discussions between people with hemophilia and their healthcare team. Help us make this great tool even better! Participate in our impact study today: bit.ly/4jnN6bj

🩸 Help improve #hemophilia care! The WFH Shared Decision Making (SDM) Tool supports informed treatment discussions between people with hemophilia and their healthcare team. Help us make this great tool even better! Participate in our impact study today: bit.ly/4jnN6bj
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🌍 The WFH recently visited #Mozambique met with the Associação Moçambicana de Hemofilia (AMH), visited the main HTC and met with the Ministries of Health and Education. The visit showcased AMH’s commitment & support to people with #BleedingDisorders in the country.

🌍 The WFH recently visited #Mozambique met with the Associação Moçambicana de Hemofilia (AMH), visited the main HTC and met with the Ministries of Health and Education. The visit showcased AMH’s commitment &amp; support to people with #BleedingDisorders in the country.
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🩸 Thanks to support from the WFH programs, such as the Humanitarian Aid Program, a young man with #hemophilia A in #SriLanka has regained his mobility and is walking again—with a prosthetic limb, and a renewed future. Read more his story: bit.ly/3SRTUTo

🩸 Thanks to support from the WFH programs, such as the Humanitarian Aid Program, a young man with #hemophilia A in #SriLanka has regained his mobility and is walking again—with a prosthetic limb, and a renewed future. Read more his story: bit.ly/3SRTUTo
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🧬Experts and patients worked together to create simple, clear language about gene editing for #hemophilia. This helps people better understand treatment options and make informed choices about their care. Read now: bit.ly/3FFSokk

🧬Experts and patients worked together to create simple, clear language about gene editing for #hemophilia. This helps people better understand treatment options and make informed choices about their care. Read now: bit.ly/3FFSokk
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🌍 Learn about the latest treatment innovations, how they’re changing clinical practice, and what it means for access around the world. 📅 Join the conversation on equitable care at #GPAS2025: bit.ly/4kG3TYd

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Hemophilia Pathmakers is BACK! The WFH is pleased to partner with @Sanofi and Reuters Events Pharma for this initiative, which aims to build a global movement that enables equitable access to treatment and care for the global hemophilia community. Register: bit.ly/4e1rVdw

Hemophilia Pathmakers is BACK! The WFH is pleased to partner with @Sanofi and <a href="/RE_Pharma/">Reuters Events Pharma</a> for this initiative, which aims to build a global movement that enables equitable access to treatment and care for the global hemophilia community. Register: bit.ly/4e1rVdw
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💡A new study explores how myofascial therapy can improve joint health in people with #hemophilia. Supported by the WBDR Research Support Program, the study highlights the potential of low-cost, integrated care to improve quality of life. Read more: bit.ly/4n1ScMW

💡A new study explores how myofascial therapy can improve joint health in people with #hemophilia. Supported by the WBDR Research Support Program, the study highlights the potential of low-cost, integrated care to improve quality of life. Read more: bit.ly/4n1ScMW
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A new study from Egypt looks at Glanzmann thrombasthenia (GT)—a rare bleeding disorder in children. Common symptoms were nosebleeds, skin bruising, and stomach bleeding. Most kids responded well to treatment, especially to rFVIIa (90% success). Read more: bit.ly/3HRItsv

A new study from Egypt looks at Glanzmann thrombasthenia (GT)—a rare bleeding disorder in children. Common symptoms were nosebleeds, skin bruising, and stomach bleeding. Most kids responded well to treatment, especially to rFVIIa (90% success). Read more: bit.ly/3HRItsv
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🏥 Thanks donated factor VIII from the WFH Humanitarian Aid Program, a 28-year-old man living with chronic hip pain and mobility issues received a life-changing total hip replacement in #Nepal—and is now walking comfortably again. 📖 Read more: bit.ly/4ljxW7X #hemophilia

🏥 Thanks donated factor VIII from the WFH Humanitarian Aid Program, a 28-year-old man living with chronic hip pain and mobility issues received a life-changing total hip replacement in #Nepal—and is now walking comfortably again. 📖 Read more: bit.ly/4ljxW7X #hemophilia