York Hull Adult CF Centre (@yorkhullcf) 's Twitter Profile
York Hull Adult CF Centre

@yorkhullcf

Specialist Cystic Fibrosis centre covering the York and Hull region. Enthusiastic about excellent local care.

ID: 1052576687186239489

linkhttp://www.yorkhullcf.org.uk calendar_today17-10-2018 15:06:52

620 Tweet

415 Followers

317 Following

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

It's #HelplinesAwarenessDay, a great opportunity to remind you that for anyone looking for information or support with any aspect of #cysticfibrosis, our friendly Helpline team are here for you. ☎️ Plus, you can now reach us via WhatsApp!

It's #HelplinesAwarenessDay, a great opportunity to remind you that for anyone looking for information or support with any aspect of #cysticfibrosis, our friendly Helpline team are here for you. ☎️
Plus, you can now reach us via WhatsApp!
Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

This Tuesday 20 February marks the official 60th anniversary of Cystic Fibrosis Trust and we are very pleased to share that a number of landmarks across the UK have agreed to light up in yellow to celebrate with us! Check out our list of landmarks! ⭐ ow.ly/fUzy50QC7nP

This Tuesday 20 February marks the official 60th anniversary of Cystic Fibrosis Trust and we are very pleased to share that a number of landmarks across the UK have agreed to light up in yellow to celebrate with us!

Check out our list of landmarks!
⭐ ow.ly/fUzy50QC7nP
Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

Are you yet to fill out the Your Life and CF Survey? We're particularly looking for people in #Scotland, #Wales and #Northenireland to complete the survey and obtain vital information from across the UK. We'd love to hear from you. ➡️ ow.ly/JaWN50QHNXX

Are you yet to fill out the Your Life and CF Survey? We're particularly looking for people in #Scotland, #Wales and #Northenireland to complete the survey and obtain vital information from across the UK. We'd love to hear from you. 
➡️ ow.ly/JaWN50QHNXX
Dan Beever (@dan_beever) 's Twitter Profile Photo

Very grateful to those that have completed my survey or shared it - it will close in a couple of weeks so any further help in boosting response numbers would be much appreciated. Particularly keen to hear from more people with CF & carers! 🙏🏻 #CysticFibrosis #MRI

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

This week, NHS England have confirmed in a statement that commercial negotiations for the modulator appraisal have started and are on-track, as the process continues. (1/3)

York Hull Adult CF Centre (@yorkhullcf) 's Twitter Profile Photo

Work Forwards CF Trust's programme Empowering people with cystic fibrosis to fulfill their career dreams and aspirations More info below cysticfibrosis.org.uk/life-with-cyst…

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

People with #cysticfibrosis are living longer than ever. However, living longer with CF can bring its own challenges. We hosted a workshop bringing together researchers, healthcare professionals, and the CF community making this a research priority. ow.ly/xRkn50QXMFa

People with #cysticfibrosis are living longer than ever. However, living longer with CF can bring its own challenges. We hosted a workshop bringing together researchers, healthcare professionals, and the CF community making this a research priority. ow.ly/xRkn50QXMFa
York Hull Adult CF Centre (@yorkhullcf) 's Twitter Profile Photo

Happy Easter!!! Just a quick reminder : OUT OF HOURS CF CARE over Easter period York Ring Hospital Switch Board on 01904 631 313 Ask for Operator Request CF On-call Hull Ring Hull Hospital Switch Board on 01482 875 875 Request CF On-call

York Hull Adult CF Centre (@yorkhullcf) 's Twitter Profile Photo

Work Forwards is CF Trust's programme of free tailored careers information, advice, and guidance for people with CF and their loved ones. Know your value! Cystic fibrosis, work and transferable skills webinar Wednesday 1 May, 12.30 – 1.30pm, online cysticfibrosis.org.uk/life-with-cyst…

York Hull Adult CF Centre (@yorkhullcf) 's Twitter Profile Photo

Work Forwards is CF Trust's programme of free tailored careers information, advice, and guidance for people with CF and their loved ones. Self-employment: the importance of business planning Tuesday 21 May, 12.30-1.30pm, online webinar cysticfibrosis.org.uk/life-with-cyst…

York Hull Adult CF Centre (@yorkhullcf) 's Twitter Profile Photo

Lovely Adrian is going to 'chop his very long hair off' on his BD, 15th May to raise awarness of Cystic Fibrosis and raise funds for CF Trust Cystic Fibrosis Trust!! justgiving.com/page/adrian-mo…

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

Our free body image booklet explores body image issues people with CF have told us they can struggle with, and provides support and advice for dealing with these issues. It also explores some of the positive aspects of body image and cystic fibrosis. ow.ly/5RcH50RuPEW

Our free body image booklet explores body image issues people with CF have told us they can struggle with, and provides support and advice for dealing with these issues. It also explores some of the positive aspects of body image and cystic fibrosis. 

ow.ly/5RcH50RuPEW
York Hull Adult CF Centre (@yorkhullcf) 's Twitter Profile Photo

Check out Ad's new hairstyle following Big Shave to raise funds for CF Trust. Just giving fundrising page is still open if you would like to donate! Adrian Moss is fundraising for Cystic Fibrosis Trust (justgiving.com) #cftrust

Check out Ad's new hairstyle following Big Shave to raise funds for CF Trust. Just giving fundrising page is still open if you would like to donate! 

Adrian Moss is fundraising for Cystic Fibrosis Trust (justgiving.com)

#cftrust
Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

"It can be scary and depressing when you have CF so I hope my story can show that some people with CF can live a long, happy and fulfilling life." Paul, who is seventy and has #cysticfibrosis, shares his story on our website. ➡️ ow.ly/PMAH50SvTr6

"It can be scary and depressing when you have CF so I hope my story can show that some people with CF can live a long, happy and fulfilling life."

Paul, who is seventy and has #cysticfibrosis, shares his story on our website. 
 
➡️ ow.ly/PMAH50SvTr6
York Hull Adult CF Centre (@yorkhullcf) 's Twitter Profile Photo

In relation to the below post re Creon supply shortages. Please contact your CF team if you are afected by the situation, or you need any help or advice. Tel 01904 725601- York 01482 622495- Hull Text 07816 330 902- York 07471 978 990- Hull