Today our Humans of #CADASIL series is featuring Barney. This is Barney and his sister, Marilyn. Barney was diagnosed with CADASIL in 2010. His doctor says he’s a bit of an outlier; as he is doing pretty well at age 72. Barney is participating in both the CADASIL Consortium and

I’m so grateful to research participants who join our study. Their contributions drive the science that gives me hope! Please consider joining a study and helping us find a cure for #CADASIL — email our research coordinator [email protected] for info. elahilab.com/studies

I’m honored to have been selected as a Top 10 Conversation of 2023 at Aspen Ideas. Such a wonderful meeting of creative minds across societal sectors.

What is #CADASIL & why should you know more about this disease? 👇 Share w/ family & friends teamconnor4cadasilcure National Organization for Rare Disorders (NORD) Fanny Elahi, MD, PhD Project CADASIL CADASIL Awareness #stroke #migraine #cognitiveimpairment #KnowledgeIsPower youtu.be/Hy8zi-oYT3I?si…

Do you know the symptoms of #CADASIL?teamconnor4cadasilcure National Organization for Rare Disorders (NORD) Fanny Elahi, MD, PhD Project CADASIL CADASIL Awareness #stroke #migraine White matter disease #cognitiveimpairment #KnowledgeIsPower Learn more here. youtu.be/Hy8zi-oYT3I?si…

To celebrate the new year, today Humans of #CADASIL features Fanny Elahi, MD, PhD, a physician and behavioral neurologist-neuroscientist at Icahn School of Medicine at Mount Sinai. Dr. Fanny Elahi is a CADASIL expert and is leading the charge to develop treatments and eventually a cure for CADASIL. In addition

It’s an honor to be a part of the CADASIL community and to care for those affected. Grateful to the patients & families who participate in research and to the scientists and research coordinators in my lab who have joined our shared mission to develop treatments for CADASIL.

Michael was diagnosed with #CADASIL after a stroke in 2015. Since then, he and his family have focused on raising money to combat CADASIL. Michael and his family’s work raising funds and increasing awareness includes proceeds from four children’s books he’s written, bike rides,

Team CADASIL has been invited back to The Million Dollar Bike Ride for Orphan Disease Research UPenn Million Dollar Bike Ride by ODC for 2024 and registration is now open! In the past five years, Team CADASIL has raised over half a million dollars through MDBR which has supported CADASIL researchers in

New paper from the Elahi Lab! Our latest work in @BrainComms provides new clues into the connection between enlarged perivascular spaces (ePVS), inflammation & cognition in #CADASIL. 🔗➡️academic.oup.com/braincomms/art…

"Although #CADASIL is incurable, awareness of it among the public and healthcare professionals is critical." Learn more about the rare vascular disease, one man's story, and his wife's determination to spread awareness. Northshore Magazine nshoremag.com/faces-places/f…

Exciting breakthrough in vascular dementia research! 🧠 Our latest pre-print identifies unique blood proteomic signatures in CADASIL, the most prevalent monogenic form of vascular cognitive impairment and dementia (VCID). biorxiv.org/content/10.110…

The #CADASIL Connection webinar recording for April is now available. #cureCADASIL Follow the link: conta.cc/3Qh23jk

📣 Save the date 🗓️ This year’s Patient-Investigator Meeting is 6/29! Join us in-person at the Eaglewood Resort in Itasca, IL, or tune in to our live stream 🖥️, for talks by leading #CADASIL researchers & conversations with community members. Register: conta.cc/3wvnB51

This Scientific Statement from the American Heart Association | Stroke was published in August of 2023 and may be helpful to print and bring to doctor's appointments. #CADASIL ahajournals.org/doi/full/10.11…

Our Patient-Investigator Meeting is on June 29! Join us for updates on #CADASIL research from experts from around the world 🌎 Register for in-person or virtual here: curecadasil.org/2024-curecadas…

If you have or are at risk for #CADASIL, please consider signing up to be a part of Fanny Elahi, MD, PhD's study, which is supported by the Chan Zuckerberg Initiative Initiative. If you would like to learn more or are interested in participating, email [email protected] or visit

Thank you Biohub for bringing patients and researchers together to make discoveries that will help rare disease and beyond. Together we’ll end CADASIL 🙏 Friedman Brain Institute Project CADASIL cureCADASIL